Tuesday, April 4, 2017

What's the News?

It's been forever because it feels like there is nothing to say when all you have to say is "My head hurts, and it still hurts. Have I mentioned my head hurts?"

I could call it brain pain or headaches or migraines. Regardless...it's pain and it's a pain in the mother fucking ass!

I guess there is a new development. I am getting a new procedure on April 21 called a Sphenopaltine Ganglion (SPG) Nerve Block using high frequency nerve ablation.

I've had two procedures where they used a needle to directly apply lidocaine to my Sphenopaltine Ganglion nerve bundle. They were SO painful, but it worked to take the pain away! Unfortunately like the nasal application, it didn't last long. The first time it lasted 32 hours, which was awesome! It was supposed to last 3-6 months, though. The second time it was only a few hours. To do this, they tape my head to a table and use a CT machine to watch as the doctor inserts a needle through my cheek, under the Zygomatic arch, and up to the SPG and release Lidocaine onto it. OMG it hurts SO bad!!

So that's basically what they'll do on the 21st, but only on one side. The other two procedures were to determine if the SPG is indeed where my pain is coming from. Since the Lidocaine worked, that tells us that we are on target. They will put a larger hollow needle through (I feel woozy just thinking about it) and then put a probe through and apply a high frequency to the nerves to damage them. The outcome should be that the nerve then shrivels up. It should regenerate as a healthy nerve that doesn't shoot off for no reason. If it still shoots off, I still should have at least 6-18 months of relief.

Five weeks later, I will get the second one if the first one works. I get bilateral headaches. What's interesting is that my official diagnosis is daily chronic migraine of unknown cause, but I don't think they are migraines. They have no migrainal characteristics. They are always on two sides. I don't get auras. I don't usually get sick and if I do get nausea it's due to pain level, not a migrainal misfire.

Sometimes I call them migraines just because I get tired of people thinking it's "just a headache".  There is a lady at work who I can't even mention if I'm having a bad day (mention it to her). The last few times I have, usually because she comments that I'm wearing sunglasses, she's said, "Oh yeah! I know! I have a headache too!"

Really? You know?

You have a headache too?

Do you?



That was with my inside voice.

Outwardly I just smiled, looked at her like, "Are you kidding me??" and walked off without saying anything.

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